Hi gindy
I saw your post and had to reply straight away because I experience identical symptoms and have done for many years.
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I have SSc diagnosed 12 years. Like you I get digital ulcers which in some really bad cases can take six months to heal. One GP I had suggested “just don’t get them in the first place”. Everyone with SSc and raynauds knows how hard we try NOT to get them! I have had so many ulcers now that my finger tips never return to ‘normal’ and are permanently disfigured and pitted.
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When the weather gets cold (like now!) I start to get tiny little splits almost like a paper cut as you say, particularly where the finger tip meets the nail bed. If I’m really unlucky that will develop into an ulcer, sometimes under the nail bed which is terribly painful. It’s taken me years to learn how to manage them effectively. I have twice yearly iloprost infusions at the Royal Free which helps a lot and I feel totally supported by them.
The tiny cracks appear with a sharp pain which is always a sign to do something. I know that many health professionals say leave them open but for me that doesn’t work. To avoid the ulcer, as soon as the crack appears, however tiny, I cover it immediately with a small dry breathable dressing such as melolin with a finger bandage to keep it in place. This looks a bit over the top but keeps the germs out which is the key thing. I ALWAYS wear disposable vinyl or nitrile gloves I keep a box by the sink. Not rubber gloves as I think they breed germs in the tips after a while. Keep reapplying the dressing until the split settles down and keep it moisturised to soften the skin.
I’ll do anything to avoid the ulcers they’re so painful, impossible to heal sometimes and horrible to live with.
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Sorry for such a long answer but I really hope it helps.
All the best to you and keep warm in this chilly weather
Lindy
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