A Guide to Writing Disabled Characters

Hello!

I’m not a burn survivor myself, so I’ll mostly talk about facial differences/visible disability in general and link some stuff made by burn survivors.

First thing, I think it’s important to remember that being a burn survivor changes a lot of things – not only appearance. Very important part is the psychological one, but I’m not a burn survivor so I will just let the resources linked below speak.

From the physical aspect, burns can also come with: chronic pain, limited range of motion due to scarring, tightened skin, problems with regulating temperature, itching, skin irritation, and even different nutritional needs during the initial healing process.

There is also specific everyday care associated with burns – something you basically never see in fiction. That could be things like occupational therapy, physical therapy, skincare (like heavy moisturizing and scar massaging), wearing sunblock, wearing splints, or stretching to prevent contractures or tightness.

There are also different types of burns and they (unsurprisingly) differ from each other – for example, electrical burns have a much higher rate of amputation than any other type. Chemical burns can cause eye issues. A burn caused by a fire in a closed space might result in a brain injury due to the lack of oxygen. A much larger portion of people than you (probably) assume have survived burn injuries as small children, and if they were young enough they might not even remember the event at all, unlike older people who might be very affected by the trauma.

Experiences of a person with 80% body surface burns, a person with quadruple amputations from an electrical burn, a person with a facial burn, and a person burnt very recently will be different from someone who has a 5% body surface 2nd degree burn in a spot that’s usually hidden, who has lived with their burn for a decade – despite them all being burn survivors.

When it comes to more thorough research, I recommend going through Phoenix Society’s and Face Equality International’s websites to learn more about both real burn survivor’s perspectives, and face equality as a social justice topic. I think the 3rd link (see below) puts it very well when talking about burn survivors being represented in fiction:

“Most likely, these characters were not created by someone with lived experience. The result is an increasingly garbled game of telephone […] To avoid contributing to this false narrative, embrace research as part of the process. Explore interviews, first-person accounts, and articles from reliable sources.”

I personally think that the links below should be mandatory reading for writing not only burn survivors, not only people with facial differences, but visibly disabled people in general – because the treatment we get is often so similar the advice still holds up just fine. And if you don’t plan on writing any of these, you should still read them to see how prevalent of a problem ableism in media is.

Lise Deguire’s Hey Hollywood – scars don’t make you evil.

Face Equality International’s International Media Standard on Disfigurement.

Niki Averton’s Tips for Writing about Burn Survivors.

The main sentiment that you will read from basically any first-hand source is that if you’re writing the burn survivor to be either:

  • evil (just throw the whole character away)
  • a guy with the “World’s Saddest Most Tragic Backstory Ever and It’s So Sad and Tragic” (because he revealed he has a scar)
  • a helpless victim who is there to be The Helpless Victim

…then you’re already doing it wrong and need to make some major changes.

From our blog’s reblogs and posts, you might want to look at tips for writing a visibly different/disabled character and tips on drawing people with facial differences. Neither are specific to burn survivors but cover the topic of visible disability and facial differences.

Now for tips on drawing burn survivors (that weren’t included in the last link);

  • Reference real people. 99.9% drawings of burn survivors seem to go through the same “increasingly garbled game of telephone” that Niki Averton mentions with how burn survivors are written, in that the newer the drawing, the less in common it has with how real people with burns look like because people reference from each other and none of them ever think to actually check if their depiction is accurate. If you just google “burn survivor” you will very quickly notice that burn survivors don’t have that damn red overlay layer put on top of their skin. It just doesn’t look like that, and basic research (aka Google Images search) will tell you that – and still, people color a hand with bright red and think that’s how it looks like (it doesn’t).
  • In the same vein, maybe don’t just draw an able-bodied person and then put some scarring on top (or maybe do exactly that. No burn scar and no burn survivor is the same, and there are people that fit what I just described… but hear me out for a second). Think about how scars interact with their features – do they have both of their ears? Do they still have all of their hair? Do they only have parts of their eyebrow? Do they have all of their fingers? Can they move the same as before their burn, or are their scars limiting their joints? How did their body react to the post-burn hypermetabolism? Lots to think about. Take into account what type and thickness of burns your character has.
  • Ditch the mask trope. Just ditch it. There’s no need to cover your character’s scar from the world unless you as the author think it requires to be hidden, is too scary to show, or other ableist trope that seems to always come up with drawings of visibly disabled people, especially burn survivors. The one exception I will mention is a transparent face orthosis/mask (TFO) that facial burn survivors might wear while awaiting a skin graft early after their injury. But as the name suggests, it’s transparent and doesn’t work for the “scary facial difference, better cover it up and only reveal it in some hyper dramatic scene!” trope because you can see right through it. (I will also mention that TFOs are a very modern thing. Your medieval burn survivor wouldn’t be wearing one).
  • No “body horror”, no “gore” tags or trigger warnings or whatever. That’s a human being. If you feel the need to warn your followers before they see a disabled person existing, you’re better off not drawing them.

Some last notes;

Throughout this ask I used the term “burn survivor” rather than “burn victim” because that is, to my knowledge, the general community preferred phrase. Individual opinions will differ (because no group is a monolith) but “burn survivor” is generally the safest term to use and probably the best if talking about a fictional character.

Similarly, I used “facial difference” rather than “disfigurement”. Just as the above, opinions will differ on what is the best to use but I personally, as someone with facial asymmetry and a cranial nerve disorder, heavily prefer the term “facial difference” over “disfigurement”. (I am in this case The Individual Opinion Differing because you can notice that in the links above, facial difference and disfigurement are used interchangeably. The general community uses both, some people have specific preferences. I’m some people). When talking about a fictional character, “facial difference”, “visible difference” and “disfigurement” are all probably fine. Just stay away from calling a person “deformed”.

mod Sasza